Tuesday, January 18, 2011

5 Weeks!!!

This week has been great so far. Sunday Uncle Ryan came over form Council Bluffs to see Lil Miss Lexi for the first time. He had been sick and didn't want to spread the germs, and we thank him for that!!! So he got here before I got to the hospital and I received a text saying "So I am looking at Miss America in the making!!! It was so sweet I saved it on my phone! So I knew he had got to meet Lexi! Sorry guys I think shes kinda cute...haha k she's really cute...
So anyways Saturday we got our last round of antibiotics for the staph infection. So they asked if I would let them start giving her steroids to help with the inflammation in her lungs and help increase the surfactant for her lungs to work better on their own. Then I got told all the pros and cons, and the pros by far out weighed the cons, so I said go for it!
When I got to the hospital on Sunday Lil Miss wasn't a happy camper she was fussy (without sound because of the vent) and pulling on her vent tube...She just wasn't happy and it just wasn't her! So they talked about taking her off the vent because the steroids had already started to kick in for her she was doing good breathing. So we went off to lunch while nothing was going on. When I got back to the room they were all there waiting for me to come back because they were moving her to CPAP ( which is a step up, but it looks kind of scarier than the vent. So the vent came out (which Lil Miss had already pulled it half way out on her own) and the CPAP is in! I can hear my beautiful daughter make sounds again. Her cry, her grunts, her everything is so cute!!! Love it!!!
So today was Roberts first birthday as a daddy...HAPPY 29th BIRTHDAY ROBERT!!! So he got to hold Lexi for the first time! It was so sweet, I got as many pictures as he'd let me take. She wasn't too fond of the flash so he kept telling me she didn't like it so I'd quit...haha! She snuggled right in in her daddy's chest and loved every minute of it.
She is now 1163 grams =2lbs. 9oz. and 14 inches!!! She is up to 21ML for feedings now (every three hours). She is having a great day today, as I'm typing she is actually turned down to room air and she is doing great! We just hope this keeps going great, so I don't have a hard time going back to work on Monday!
Keep the prayers coming, because they sure are working!!!

Tuesday, January 11, 2011

4 weeks!!!

Wow now Lil Miss Lexi is 4 weeks old...2Lbs 6oz. and as beautiful as ever. I know shes mine but she is just getting so cute since she is filling out. She is so active for her size, she stretches, yawns, and moves her head around. It is amazing how strong she is. I bathed her tonight and put lotion on her (she loves her feet and hands massaged) so now she smells so good. She has a clean diaper and a full belly (we are up to 16 ML on her feedings now, YAY!) and she is snuggled in on her belly ( her favorite place to be) and out like a light and loving it!
She is so awake at her 9 PM cares its kinda funny. She just stares at me the whole time and stays awake for quite awhile. I'm really going to miss that the nights I work starting Jan 24th, but like I said bills don't pay themselves or go away (LOL).
Lexi had to have her 4th blood transfusion but it makes her feel so much better when she gets it. We have 3 days of meds left for the Staph infection and then we should be done with that! She is such a trooper, poor thing got poked three times yesterday before they got a IV in, poor thing. I can't watch I leave the room.
They said the brain bleed has resolved so that is wonderful news! Other than that Lexi is just eating, gaining, sleeping, and dirtying diapers right now!!!
Thanks everyone for the prayers...keep them coming, because they sure are working!!!

Wednesday, January 5, 2011

3 weeks!!!

Well can't believe my Lil L is 3weeks yesterday!!! She is amazing...we are back to resuming feeds after we stopped Sunday am when her belly became hard and she had xrays done right away to see if there was a blockage and there wasn't, but her bowl was distended and lots of air in her tummy. So they put a tube into help draw the air out. They found out that she has Staph infection and believe that was the cause of the bowel problem. So she is on her third day of antibiotics, she'll have seven days. Yesterday she started her feeds back up because her last 4 xrays came back better and better each time. So they will increase her feeds quicker than last time because she was tolerating them well til her bowel problem, so lucky it was caught way early and she's really not acting too sick. She seems to be doing really well, we have had quiet nights since Sunday early AM, momma was up from 1am til 5am with her sounding alarms and making me nervous. Then they had to run an IV, do an Xray, and draw blood so she was wiped and let momma sleep that morning!
Now I know why everyone says you have good and bad days, but more good than bad. Just seems sometimes we get a few steps forward and take three steps back, as Robert would like to add to that comment "She just likes to dance". I don't know what I would do without him sometimes, he has tried to keep me positive and tries to make very bad into something good no matter what.
Well that's about it for the day, she's just kinda hanging out right now...Hoping for some holding time soon!!!
Thanks everyone for all the prayers!!!